Sunday, June 20, 2010

Beach Time!

We went to the beach with a group of friends a couple of weeks ago. It supposed to be 80 in the valley and 70 at the coast. It was gorgeous all day long at the beach, but the only bad thing was it was very windy. All of us adults were also too worried about the kids getting sunburned that we kept reapplying their sunblock and never put any on ourselves. We all got fried! I had on capri's so I had a nice line and then red shins and feet. Poor Adam got burned from his knees down. Lauren was great though, no burn for her. :)
This was Lauren's first time being able to crawl around in the sand. I'm pretty sure she liked it. She wasn't quite sure what to think at first, but she had a great time with all of our friends.
Smiling at Daddy. Look at that red hair! Adam says she's "strawberry blond." Hahaha
Talking to Dad

NICU Reunion

Lauren, my parents and I went to the St. V's NICU reunion on June 6th. Adam had to work so he couldn't go. We had a great time and it was nice to see some of the doctor's and nurses again. It also tugged at my heart a little bit, seeing them and all, but I am so glad that we went. They were all so glad to see us and didn't even recognize Lauren because she was so big.
Here we are in front of the Giraffe isolette. This was her $30,000 crib! Most people think that preemies go right into this bed, but they don't get to until they are stable. Lauren was in an open crib for a very long time because of her apnea/bradycardia spells.
Lauren, Marty and Audry! These were 2 of Lauren's amazing Nurses. Marty (in the middle) was Lauren's very first Nurse. She made Adam & I feel so comfortable with the care Lauren was getting. She said Lauren was sure a fighter being so early & small. They were both at the desk when we arrived and remembered us. Well--they recognized me because Lauren had changed so much. Audry and I caught up like old friends who hadn't seen each other in a while. I guess when you spend as much time in the NICU as I did that's bound to happen. We also saw Dr. Kaempf, but he was surrounded with people so I didn't ask for a picture. I will get one next year though for sure. We also saw some of the other families that we spend time with in the NICU. Lauren is doing so well and it was apparent on this day. We are so lucky that she hasn't been re-hospitalized or have any ailments. We still don't know about learning/speech disabilities, but we will cross that bridge if/when they come. Sometimes I think why were we so lucky to not have any issues like Cerebral Palsy or feeding tubes etc? I don't have an answer, all I know is that we are so lucky.

Cuteness

Here is Lauren dancing. This toy is great! It plays all sorts of fun music and ABC's. She loves to dance. She can now dance on command. We ask her "can you dance?" and she shakes her hips and head from side to side. She gets really into it sometimes. I need to get it on video and post it. She just makes me smile all the time!
Yes her shirt says "how cute am I?" She is too cute for words if I do say so myself. :)

More Birthday Pics

Lauren playing with a balloon before the party started.
Lauren and her boy BFF Diego
Tissue paper is so much fun!
Actually helping open a present. This lasted about 5 minutes.

We had the A/C on because it was really humid out. The balloon flew when the air turned on and Lauren loved it! She was laughing at it and now she loves to go to the vent when the air turns on and stick her face in front of it and let it blow her hair around. She's too cute!

Lauren's First Birthday

Lauren is 1 year old! I can't believe she is a year already (well, now 13 months today or almost 9, however you want to look at it.) The day before and her birthday were both hard days for me. Not that her birthday wasn't a WONDERFUL day, just lots of feelings about how my life changed the year before. I had feelings of such happiness & joy on her birthday but to be honest I also had feelings of guilt and sadness. Guilt because it was me who was so sick that they had to take her way too early to make sure that I would live. My liver was on its way to rupturing and neither of us would probably make it if that happened. I try to tell myself there's nothing I could have done, but I still feel guilty. I think that feeling no guilt would be abnormal. Hopefully you guys understand what I mean. I felt sadness because emotions of her first hours came flooding back. It is so hard to see your child literally fight for their life. I remembered how it felt to first see her--so tiny. There was no way I could have ever prepared myself for how small she really was. I remember how sad I was that she had to fight so hard to stay with us, but incredibly happy that she was fighting so hard. It was kind of a catch 22...I remember wanting her to fight so hard to stay with us, but I didn't want her to hurt or if it was too hard for her to fight, it would be okay if she had to leave us. Mommy & daddy would be okay. No one should ever have to say goodbye to their child and we are lucky that Lauren was so strong. She is one amazing little girl. I look at her now with all the admiration in the world for her. She has taught me about a new kind of love, for both her and Adam.

Now for some updates:

Lauren weighs about 20lbs! She has a big girl car seat and is still rear facing until she is 1 year adjusted at the end of August. Mainly keeping her rear facing is because her bone density isn't that of a 1 year old, it's that of a 9 month old.
She's been sick a couple times now. :( Once around Mother's Day and currently she's on the tail end of a cold. She has never had any breathing problems thank god. Hopefully she will be over this one soon. Unfortunately she did manage to get Adam sick this time. She got me sick last time.
She is eating table foods now. What a big girl! She still has no teeth though. The doctor always says "they are so close." She's eating fine without them though. :)
She saw the Developmental/Behavioral doctor at St. V's at the beginning of the month and she said she is doing great. I'm not the biggest fan of the doctor (I don't think she does well with adults, that's why she works with kids) but that's the only one they have up there. The Physical Therapist also isn't too high on my list either. She freaked about Lauren getting on her toes and pulling herself up with her upper body. She ended up talking about how "we will have to put her in braces if she doesn't stop that." Our pediatrician isn't too worried about the tip-toe issue because she can stand flat footed. We do some foot/ankle stretches to make sure her muscles aren't too tight to please the physical therapist. It's really hard when you have different people telling you different things. The doctor also wants to send her to a pediatric dermatologist because of the spot on her left arm that every doctor has told us is a hemangioma. She said "I'm just not convinced that's what it is." Keep in mind this doctor saw the same spot in December and agreed it was a hemangioma like everyone else. I'm not mad at the fact that she's not convinced that's what it is, I'm annoyed at the fact that she tried to deny ever saying she had seen it before. I just want to know what it is. Anyhoo--now for some fun pics because I know that's what you all really want!

The above picture is from Lauren's birthday party. Kathy was saying something very important!
Family picture! She was getting a little tired of the cake I guess.
Yummy frosting!
Lauren checking out the candle. I'm a bad mommy and completely forgot to get a picture of the cake and food. Next year I will do better! It was all really cute though!
Daddy and Lauren before the party.